Urgent / Emergent

As a result of our ongoing humanitarian efforts, it is not uncommon to find a patient with special needs, either urgent or emergent.  Below is a list of some of the patients who are in desperate need for surgical intervention.

Many of them will need emergency surgery and will need to be flown to the United States within hours or weeks of their initial diagnosis while others may have a urgent need that requires surgery within 6-24 months.

Please include with your donation the ID number for the patient you wish your funds to sponsor.

Urgent Need:

ID# 7043 (5 yo female with Infantile Scoliosis)

5 year old female who presented to ISF for the first time in 2011 with history of scoliosis without formal diagnosis or workup. She is very active and playful and currently is able to ambulate with only mild instability. She has clear visual field issues and currently wears glasses. The possibility exist she has a connective tissue disorder.

Her workup prior to surgery will include Computerized Tomography (CT) scans of her cervical and thoracic spine as well as MRI of both areas. A full evaluation by a Cardiologist and a Geneticist including labs out of Miami will help identify any underlying pathology that may impact her surgery. Unfortunately her family does not have the financial resources to pay for the necessary diagnostic studies, pre-surgical laboratory work-up or for her Surgery.

This patient will need a higher level of care than what can be expected in the Dominican Republic and will require extensive spine management in the United States.  We will need a sponsor who will be able to support her treatment.  Please contact us if you are able to help.

ID # 7046 (Infantile Scoliosis)

7 year old boy who was first diagnosed with scoliosis 4 years ago.  Per his mother, he was given a corset to wear for his spine spanning the last 4 years with no improvement in his deformity.  There is a strong family history of scoliosis in both his mother, aunt, as well as 3 other family members.  He was born premature with no intrauterine infections or other issues.  He began to walk late at 1year and 6 months, and continues to have issues with his speech.  There are no current issues with his hearing and a normal neurologic examination, yet there is a significant spine deformity on examination.

His mother currently has a high grade scoliosis and also is in need of surgical intervention. She would first like her sons spine corrected before her surgery is completed.

The family is in need of help to afford the necessary preoperative evaluation before his surgery and will need growing rods and serial spinal surgery over the years to provide some correction of his scoliosis during the second anticipated growth spurt.  It is during rapid growth that a scoliosis deformity will also progress and can leave a person with a significant disability.

He is currently scheduled for surgery in September 2014.

ID# 7443 (15yo male with congenital scoliosis, acute visual loss, and a connective tissue disorder)

15 year old boy with a undiagnosed connective tissue disorder, presented to the clinic back in 2011.  His scoliosis was first identified as a newborn, but due to no financial resources, he has remained untreated and without proper follow up.  Currently his other co-morbidity includes worsening vision with a possible lens dislocation.  He is currently scheduled to see a Ophthalmologist, but still needs a complete Geneticist evaluation with multiple diagnostic studies.

He is neurologically intact in both legs and has a normal bipedal gait.  His obvious finding is his large thoracic kyphotic hump.  He has generalized atrophy of both lower extremities.

 

This patient will need a higher level of care than what can be expected in the Dominican Republic and will require extensive spine management in the United States.  We will need a sponsor who will be able to support her treatment.  Please contact us if you are able to help.

Emergent Need:

ID # 0001- Pastor with Spine Tumor- Closed

Update on the pastor. He is currently still alive and has undergone radiation and chemotherapy treatment. His spine is currently stable, with no further change in his neurologic injury.

 

Financial Impact on the Family

Part of the diagnostic work up for these patients may be costly for their families. The amounts of the various diagnostic studies outlined below may not sound like much, but keep in mind many of the people in these families may only make $200 USD equivalent per month, yet the cost of gasoline in the Dominican Republic is routinely higher than it is in the United States.

Cost of services that are not donated.

    • Pre-Surgical Laboratory Studies- RD$2,900.00
    • Intraoperative Blood Transfusion-
    • Genetics Testing (Miami)- $150 USD
    • Karyotype – RD$2,000.00
    • Computerized Tomography Spine (one region)- RD$5,964.00
    • MRI Spine (one region)- RD$9, 075.00
    • Pulmonary Function Testing- RD$2,000.00

There are multiple other cost which are critical to providing this surgical services to these wonderful patients. This inludes the cost of moving people and equipment as well as purchasing needed equipment and instruments that we are unable to obtain as a donation. this cost is over $80,000 per year. ISF Budget 2013

Please include with your donation the ID number for the patient you wish your funds to sponsor.